Researchclopedia

Research Researchers Institutions Topics Submit About

Command Palette

Search for a command to run...

Researchclopedia

Research Researchers Institutions About

© 2026 Researchclopedia. Powered by OpenAlex under CC0 license.

Back to research

Advocacy groups as research organizations: the PXE International example

2007166 citationsReview

Authors

Sharon F. Terry · Genetic Alliance

Patrick F. Terry · Genetic Alliance

Katherine A. Rauen · UCSF Helen Diller Family Comprehensive Cancer Center

Jouni Uitto · Jefferson College

Lionel Bercovitch · Providence College

Topics & Keywords

Dermatological and Skeletal Disorders Hereditary Neurological Disorders Skin and Cellular Biology Research

Publication Details

Published in: Nature Reviews Genetics

Volume 8, Issue 2, pp. 157-164

DOI: 10.1038/nrg1991

Field-Weighted Citation Impact: 6.15

Advocacy groups as research organizations: the PXE International example | Researchclopedia