Development and validation of a primary sclerosing cholangitis–specific patient‐reported outcomes instrument

201743 citationsJournal Article

Authors

Zobair M. Younossi · Inova Fairfax Hospital

Arian Afendy · Center for Outcomes Research in Liver Diseases

Maria Stepanova · Center for Outcomes Research in Liver Diseases

Andrei Racila · Center for Outcomes Research in Liver Diseases

Fatema Nader · Center for Outcomes Research in Liver Diseases

Rachel Gomel · PSC Partners Seeking a Cure

Ricky Safer

Abstract

PSC PRO is a self-administered disease-specific instrument developed according to U.S. Food and Drug Administration guidelines. This preliminary validation study suggests good psychometric properties. Further validation of the instrument in a larger and more diverse sample of PSC patients is needed. (Hepatology 2018;68:155-165).

Topics & Keywords

Liver Diseases and Immunity Liver Disease Diagnosis and Treatment Gallbladder and Bile Duct Disorders

UN Sustainable Development Goals

Reduced inequalities

Publication Details

Published in: Hepatology

Volume 68, Issue 1, pp. 155-165

DOI: 10.1002/hep.29664

Field-Weighted Citation Impact: 2.02