Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium

202143 citationsJournal Articlegold Open Access

Authors

Amanda M. Gutierrez · Baylor College of Medicine

Jill O. Robinson · Baylor College of Medicine

Simon Outram · University of California, San Francisco

Hadley Stevens Smith · Baylor College of Medicine

Stephanie A. Kraft · University of Washington

Katherine E. Donohue · Icahn School of Medicine at Mount Sinai

Barbara B. Biesecker

Abstract

Our findings support adopting a broad conceptualization of access to care encompassing multiple dimensions, using mixed methods to study access issues, and investing in innovative improvement strategies. This conceptualization may inform clinical translation of other cutting-edge technologies and contribute to the promotion of equitable, effective, and efficient access to genomic medicine.

Topics & Keywords

Health Systems, Economic Evaluations, Quality of Life Ethics in Clinical Research Healthcare Policy and Management

UN Sustainable Development Goals

No poverty

Publication Details

Published in: Journal of Clinical and Translational Science

Volume 5, Issue 1, pp. e193-e193

DOI: 10.1017/cts.2021.855

Field-Weighted Citation Impact: 9.16