Humanistic Burden of Huntington Disease

20225 citationsJournal Articlehybrid Open Access

Authors

Idaira Rodríguez Santana · Huntington's Disease Association

Samuel Frank · CHDI Foundation

Maria Doherty · Huntington's Disease Association

Rosa Willock · Huntington's Disease Association

Jamie Hamilton · Huntington's Disease Society of America

Hayley Hubberstey · CHDI Foundation

Cath Stanley

Abstract

The HDBOI study provides new insights into the characteristics and humanistic burden of PwHD and offers a meaningful contribution to this underserved research area.

Topics & Keywords

Genetic Neurodegenerative Diseases Neurological disorders and treatments Neurology and Historical Studies

UN Sustainable Development Goals

Decent work and economic growth

Publication Details

Published in: Neurology Clinical Practice

Volume 12, Issue 6, pp. e172-e180

DOI: 10.1212/cpj.0000000000200095

Field-Weighted Citation Impact: 0.51