The Burden of Caring for Individuals with Tuberous Sclerosis Complex (TSC) Who Experience Epileptic Seizures: A Descriptive UK Survey

202318 citationsJournal Articlegold Open Access

Authors

Hanna Skrobanski · Lloyd's

Kishan Vyas

Sally Bowditch

Lena Hubig · Lloyd's

Edward Dziadulewicz

Louise Fish · Tuberous Sclerosis Association

Pooja Takhar · Tuberous Sclerosis Association

Siu Hing Lo · Lloyd's

Abstract

These findings highlight the role of epileptic seizures and neuropsychiatric disorders in the considerable burden of TSC on primary caregivers and families.

Topics & Keywords

Tuberous Sclerosis Complex Research Polyomavirus and related diseases

Publication Details

Published in: PharmacoEconomics - Open

Volume 7, Issue 2, pp. 299-312

DOI: 10.1007/s41669-023-00387-1

Field-Weighted Citation Impact: 3.19

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The Burden of Caring for Individuals with Tuberous Sclerosis Complex (TSC) Who Experience Epileptic Seizures: A Descriptive UK Survey

Authors

Abstract

Topics & Keywords

Publication Details