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Burden of Illness in Rett Syndrome: Initial Evaluation of a Disorder-Specific Caregiver Survey
2023
1 citations
Preprint
green Open Access
Burden of Illness in Rett Syndrome: Initial Evaluation of a Disorder-Specific Caregiver Survey | Researchclopedia
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Rush University Medical Center
Theresa E. Bartolotta
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Monmouth University
Gillian S. Townend
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Maastricht University
Leopold Curfs
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Maastricht University
Orietta Mariotti
Claude Buda
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Rett Syndrome Association of Australia
Heather M. O’Leary
Vanessa Vogel‐Farley
Katherine V. Barnes
Edward R. Hammond
Christopher U. Missling