Development of an International SMA Bulbar Assessment for Inter-professional Administration

202311 citationsJournal Articlebronze Open Access

Authors

Sally Dunaway Young · Stanford University

Katlyn McGrattan · University of Minnesota

Emily Johnson · Great Ormond Street Hospital

Marise van der Heul · University Medical Center Utrecht

Tina Duong · Stanford University

Merete Bakke · University of Copenhagen

Ulla Werlauff

Abstract

Multidisciplinary clinicians with expertise in bulbar function and SMA used Delphi methodology to reach consensus on assessments/items considered relevant for SMA across all age groups. Future steps include piloting the new scale moving towards validation/reliability. This work supports the advancement of assessing bulbar function in children and adults with SMA by a variety of professionals.

Topics & Keywords

Neurogenetic and Muscular Disorders Research Mechanical stress and fatigue analysis Assistive Technology in Communication and Mobility

Publication Details

Published in: Journal of Neuromuscular Diseases

Volume 10, Issue 4, pp. 639-652

DOI: 10.3233/jnd-221672

Field-Weighted Citation Impact: 3.20

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Development of an International SMA Bulbar Assessment for Inter-professional Administration

Authors

Abstract

Topics & Keywords

Publication Details