Perspectives of adolescents with neurofibromatosis 1 and cutaneous neurofibromas: Implications for clinical trials

20235 citationsJournal Articlegreen Open Access

Authors

Ashley Cannon · Surdna Foundation

Kavita Y. Sarin · Stanford Medicine

Andrea Petersen · Randall Children's Hospital at Legacy Emanuel

Dominique C. Pichard · National Institute of Arthritis and Musculoskeletal and Skin Diseases

Pamela L. Wolters · National Cancer Institute

Gregg Erickson · Neurofibromatosis Network

Andrés J Lessing

Abstract

These data indicate that adolescents with neurofibromatosis 1 are negatively impacted by their cutaneous neurofibromas, and that both adolescents and their caregivers would be willing to try longer-term experimental treatments.

Topics & Keywords

Neurofibromatosis and Schwannoma Cases Soft tissue tumor case studies Soft tissue tumors and treatment

Publication Details

Published in: Clinical Trials

Volume 21, Issue 1, pp. 67-72

DOI: 10.1177/17407745231178839

Field-Weighted Citation Impact: 1.03

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Perspectives of adolescents with neurofibromatosis 1 and cutaneous neurofibromas: Implications for clinical trials

Authors

Abstract

Topics & Keywords

Publication Details