Reflections on youth partnership in a randomized controlled trial of an intervention to optimize transition from pediatric to adult care in inflammatory bowel disease

AYA patient partners' contributions to the RCT were impactful, from study conceptualization to dissemination. Their involvement ensured the intervention's relevance, usability, and youth-friendliness, informed data analysis, and enhanced knowledge translation through co-creation. Future work in this field could involve evaluating the impact of patient engagement on AYA patient partners, research teams, and research outcomes in RCTs.