A survey of adult caregivers of people with developmental and epileptic encephalopathies: A long-term care planning needs assessment

20251 citationsJournal Articlehybrid Open Access

Authors

Danielle M. Andrade · University of Toronto

Laurie Bailey

Mary Anne Meskis · Dravet Syndrome Foundation

Veronica Hood · Dravet Syndrome Foundation

Sophie Ferreira · Dravet Syndrome Foundation

Tracy Dixon‐Salazar · Lennox-Gastaut Syndrome Foundation

Jennifer Griffin · Lennox-Gastaut Syndrome Foundation

Abstract

Caregivers of adults with DEE are often family members, including adult siblings. Caregivers/families may benefit from receiving additional support to facilitate future planning of transition to adult care. The healthcare system may require changes to facilitate successful medical transition.

Topics & Keywords

Adolescent and Pediatric Healthcare Family and Disability Support Research Child Nutrition and Feeding Issues

Publication Details

Published in: Epilepsy & Behavior

Volume 172, pp. 110677-110677

DOI: 10.1016/j.yebeh.2025.110677

Field-Weighted Citation Impact: 3.12

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A survey of adult caregivers of people with developmental and epileptic encephalopathies: A long-term care planning needs assessment

Authors

Abstract

Topics & Keywords

Publication Details