Parental Use of Social Media and the Internet in the Context of Their Child’s Genetic Neurodevelopmental Disorder: Mixed Methods Study Nested in the GenROC Cohort Study

This mixed methods study shows the evolving landscape of SMG use in neurodevelopmental disorders, highlights its benefits and downsides, and is widely applicable to all parent SMGs for specific niche medical conditions. Using the strength of these groups in a more collaborative approach in the future could prove useful to clinicians, families, and researchers alike.