Patient-reported outcome and experience measures in cardiovascular disease: a scoping review as part of iCARE4CVD

This review highlights the lack of consensus in the use, validation status and reporting of PROMs and PREMs in CVD research and care. Although validated, disease-specific PROMs are widely used for key outcomes such as quality of life, there is a lack of standardised PREMs tailored to CVDs. To advance patient-centred care in CVDs, there is a need for more consistent use of validated instruments, transparent reporting of administration methods, and the development of robust PREMs. Furthermore, standardising the PROMs and PREMs used may help, particularly with regard to the comparability of findings in different studies.