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The Snapshots of Sjögren's Photovoice project invited 11 people living in Ireland with Sjögren’s disease to document their experiences through photography and personal reflection. The resulting exhibition at RCSI captured the daily realities, challenges and adaptations involved in managing this systemic and serious autoimmune disease. The study used a method known as ‘photovoice’, in which participants took photographs over December 2024 and January 2025, shared their experiences in interviews and group discussions and played an active role in shaping the themes of the project. Their contributions reflect both the visible and invisible impacts of the disease. The subsequent exhibition and booklet showcase a diverse collection of themes that seek to inform healthcare professionals, policymakers and the public about the lived reality of Sjögren’s. By blending research, art and lived experience, the project aims to promote greater empathy, understanding and action. We would like to express our thanks to the participants of the photovoice study for their remarkable contributions. Their creativity, commitment, and generosity in sharing personal experiences through visual storytelling have brought real insight into the lived realities of Sjögren’s disease. This research was funded by the Health Research Board APRO-2023-028 as part of the SYNERG-IE Research Programme (https://sjogrens-synergie.eu/)