Patient and care partner expectations and emotional experiences of lecanemab: A social media listening study

The emotional themes of risk, hope, family, fear, and more time are interwoven throughout social media with regards to lecanemab. Hope for treatment to delay disease progression was the strongest theme, while risk and fear are alluded as reasons for declining treatment. The results demonstrate the importance of social media as an engagement tool of current topics in dementia research and reveal areas of potential for increased engagement. Improved understanding of the expectations and emotional experiences of treatment may assist in patient-centered treatment decision-making and identify unmet patient needs.