Towards uniformity in bvFTD Phenocopy Syndrome: specialists’ perspectives and proposed research criteria

The first Delphi round showed expert consensus on several components of the diagnostic process for phFTD, including genetic testing for C9orf72, baseline and repeated structural MRI and FDG-PET and follow-up duration. Completing the full Delphi procedure will result in a set of research criteria. Establishment of these criteria will enhance accurate identification of phFTD, facilitate research and advance clinical care for this rare and poorly understood patient group.