Burden of hereditary angioedema: results from a multinational survey of caregivers for adult and pediatric patients

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Authors

Maureen Watt · Takeda (United States)

Inmaculada Martinez‐Saguer · National Hemophilia Foundation

Angela Simón · Takeda (United States)

Ryan Murphy

Marie de la Cruz

Ricardo Zwiener · Hospital Universitario Austral

Mauricio Sarrazola · University of Pamplona

Anete S. Grumach

Abstract

Results of this caregiver survey revealed that the caregiver role in HAE is time-demanding and adversely impacts various aspects of the caregiver's life, particularly their emotional wellbeing.

Topics & Keywords

Coagulation, Bradykinin, Polyphosphates, and Angioedema Urticaria and Related Conditions Hemophilia Treatment and Research

Publication Details

Published in: Orphanet Journal of Rare Diseases

Volume 21, Issue 1, pp. 55-55

DOI: 10.1186/s13023-025-04123-2

Field-Weighted Citation Impact: 0.00

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Burden of hereditary angioedema: results from a multinational survey of caregivers for adult and pediatric patients

Authors

Abstract

Topics & Keywords

Publication Details