Exploring the Perceptions and Practices of Exclusive Enteral Nutrition Among Adult Patients With Inflammatory Bowel Disease, Gastroenterologists and Dietitians in Australia

ABSTRACT Background Exclusive enteral nutrition (EEN) is potentially underutilised among adult inflammatory bowel disease (IBD) patients. We explore current practices and perceptions of EEN among patients, dietitians and gastroenterologists. Methods Electronic surveys were developed for patients, dietitians and gastroenterologists in Australia. Surveys were distributed during national conferences and via social media platforms. Results Surveys were taken by 67 patients, 135 dietitians and 100 gastroenterologists. Although 99% of the gastroenterologists were aware of EEN, only 39% routinely used EEN. Patient adherence was the most common reason for not utilising EEN, followed by limited dietitian support, limited clinician experience and cost. Of the surveyed patients, 64% had Crohn's Disease and 36% had ulcerative colitis. EEN had previously been tried by 21% patients of which 92% reported completing the entire EEN regimen. Majority (75%) were open to recommencing EEN in the event of future flares with/without additional medication. Among patients never treated with EEN, 72% preferred EEN with/without medication over medication alone. Most patients (95%) preferred remote dietitian consultations either exclusively (59%) or along with in‐person sessions (36%). Many dietitians (39%) did not feel they had adequate knowledge or experience to manage patients with IBD on EEN. Conclusion Although majority of patients with IBD favour trying EEN, most gastroenterologists do not routinely use EEN. Gastroenterologists' perception of poor adherence as a major barrier may be incorrect. Majority of EEN experienced patients report completed the regimen and a willingness to re‐try it. A strong patient preference for remote consultations can improve access to experienced dietitians.