Access to Healthcare for Hydrocephalus in the United States: Analyzing the Hydrocephalus Association Patient-Powered Interactive Engagement Registry (HAPPIER)

Findings from HAPPIER highlight substantial barriers to accessing specialized care for individuals with hydrocephalus, with disparities by age and insurance type. These results underscore the need for standardized long-term care guidelines and healthcare policies that ensure equitable access to specialized providers and services for all hydrocephalus patients.