Relationship Between Patient Activation and Quality of Life in HCN1-Related Epilepsy

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Authors

MOHIT KUMAR · Rural Resources

GEOFFERY IGBERAESE · The Priory Hospital

AHMED ABBAS ZEB · Army Medical College

Calum Connolly · East Suffolk and North Essex NHS Foundation Trust

SOHAM KALE · University Hospitals Birmingham NHS Foundation Trust

Ali Qayyum · Royal Stoke University Hospital

MAYS AMJAD MUSTAFA HANON

Abstract

Objectives Epilepsies due to variation of the HCN1 gene can be associated with long-term neurological and psychiatric comorbidities, which may impact daily living. The degree of patient empowerment in managing their disease substantially impacts how they assess QoL. This study aimed to investigate the relationship between patient activation and health-related quality of life (HRQOL) in adults with HCN1-related epilepsies.

Topics & Keywords

Glycogen Storage Diseases and Myoclonus Neurological diseases and metabolism Neurological disorders and treatments

Publication Details

Published in: Juntendo Medical Journal

DOI: 10.14789/ejmj.jmj25-0064-oa

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Relationship Between Patient Activation and Quality of Life in HCN1-Related Epilepsy

Authors

Abstract

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Publication Details