Bridging the gap: understanding participation barriers in ALS clinical trials through on-the-ground insights

20260 citationsJournal Article

Authors

Erica Scirocco · Center for Cancer Research

Allison Pogemiller Bulat · Amyotrophic Lateral Sclerosis Association

Judith Carey · Center for Cancer Research

Elisa Giacomelli · Center for Cancer Research

Danielle Boyce · Johns Hopkins University

Sabrina Paganoni · Harvard University

James D. Berry

Abstract

Tailored communication strategies that leverage established relationships between pALS and their trusted healthcare providers may enhance research participation. As decentralized research models evolve, improving trial education and access and fostering knowledge and trust could significantly boost enrollment in ALS clinical research.

Topics & Keywords

Amyotrophic Lateral Sclerosis Research Psychiatric care and mental health services Mental Health and Patient Involvement

Publication Details

Published in: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

DOI: 10.1080/21678421.2026.2640126

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Bridging the gap: understanding participation barriers in ALS clinical trials through on-the-ground insights

Authors

Abstract

Topics & Keywords

Publication Details