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Governing real-world health data as a public utility

20260 citationsJournal Article

Authors

Melissa A. Haendel · University of North Carolina at Chapel Hill

Ryan Ahern · Bellevue College

Kasie B. Bailey · Bellevue College

Spyridon Bakas · Indiana University School of Medicine

Daniel C Barth-Jones · Covance (United States)

Alex Bohl · Mathematica Policy Research

Abstract

The utility model offers a framework for ethical stewardship, patient empowerment, and distributed innovation.

Topics & Keywords

Electronic Health Records Systems COVID-19 Digital Contact Tracing Telemedicine and Telehealth Implementation

UN Sustainable Development Goals

Industry, innovation and infrastructure

Publication Details

Published in: Science

Volume 391, Issue 6789, pp. 993-996

DOI: 10.1126/science.aeb1178

Field-Weighted Citation Impact: 0.00

Governing real-world health data as a public utility | Researchclopedia

· Regenstrief Institute

Philip E. Bourne · University of Virginia

Rebecca Boyles · University of North Carolina at Chapel Hill

Christopher G. Chute · Johns Hopkins University

James J. Cimino · University of Alabama at Birmingham

Shaun Grannis · Regenstrief Institute

Terry S. Hartman · University of North Carolina at Chapel Hill

Michelle Holko · Biotech Park

Nathan A. Hotaling · MD Informatics (United States)

Dan Housman · Ashland (United States)

Lawrence Hunter · University of Illinois Chicago

Eric Hurwitz · University of North Carolina at Chapel Hill

Jasmin Phua · Covance (United States)

Michael G. Kahn · University of Colorado Anschutz Medical Campus

Dario Kuzmanovic · University of Southern California

Josh Lemieux · University of North Carolina at Chapel Hill

Johanna Loomba · University of Virginia

Charisse Madlock-Brown · University of Iowa

Kenneth D. Mandl · Boston Children's Hospital

Raja Mazumder · George Washington University

Julie A. McMurry · University of North Carolina at Chapel Hill

Andrew J. McMurry · Boston Children's Hospital

Zubin J. Modi · University of Michigan

Richard A. Moffitt · Emory University

Abu S. M. Mosa · University of Alabama at Birmingham

Nicholas Messina · Covance (United States)

Shawn T. O’Neil · University of North Carolina at Chapel Hill

Josh F. Peterson · Vanderbilt University Medical Center

Emily R. Pfaff · University of North Carolina at Chapel Hill

Jimmy Phuong · University of Washington

Rachel Presskreischer · University of North Carolina at Chapel Hill

Lee Sanders · Stanford University

Abeed Sarker · Emory University

Alastair Thomson · Haymarket Center

Kim M. Unertl · Vanderbilt University Medical Center

Anita C. Walden · University of North Carolina at Chapel Hill

Jim Weinstein · Microsoft (United States)