PP-2 Research priorities for family caregiving in palliative care: a systematic review of reviews

<h3>Background</h3> In 2010, the European Association for Palliative Care (EAPC) published a White Paper on ‘Improving Support for Family Caregivers in Palliative care’. The White Paper was influential in driving forward the research agenda in family caregiving, however carer support remains suboptimal and the White Paper requires updating. <h3>Aim</h3> To update the EAPC White Paper by undertaking a systematic review of reviews to identify key priorities for research into family caregiving in palliative care. <h3>Methods</h3> A systematic review of reviews was conducted by members of the EAPC Reference Group for Family Carers. Seven databases were searched and articles were included if they referenced the development of research priorities relating to family caregiving in a palliative care context. Data were extracted and framework synthesis was used to identify overarching research priorities. The protocol was registered in PROSPERO (2024 CRD42024591671). <h3>Results</h3> Database searches returned a total of 823 references, after screening 30 reviews were included. Four main areas of research priority were identified: (i) improving Methods and methodologies to better capture carer experiences and develop actionable solutions; (ii) carer centred research priorities addressing underserved populations and targeting all phases of family caregiving; (iii) health systems research priorities and; (iv) research focused on the integration of carers within healthcare teams. <h3>Conclusions</h3> This European Association of Palliative Care White Paper highlights research priorities for family caregiving in palliative care. Significant gaps remain in our understanding of how best to support carers, and research efforts are required to better understand and evaluate diverse carer experiences in the context of expanding demand for informal care globally. <h3>Impact</h3> The White Paper will be used to drive forward innovations in family caregiving research across Europe and internationally. Robust, evidence based recommendations are needed to underpin emerging interventions and solutions, and this review provides the foundation for such research.