The PRO-CAR-T™ study: achieving excellence in patient and public involvement and engagement

20260 citationsJournal Articlegold Open Access

Authors

Karen L. Shaw · National Institute for Health Research

Sarah E. Hughes · National Institute for Health Research

Olalekan L. Aiyegbusi · National Institute for Health Research

John Ansell · National Institute for Health Research

Evelyn Chakera · National Institute for Health Research

Ronjon Chakraverty · National Institute for Health Research

Mark Chatterley · National Institute for Health Research

Abstract

Integrating excellent PPIE is achievable in PRO research, even in challenging contexts that involve life-threatening conditions and complex emerging therapies. Although barriers exist, our experience suggests many can be addressed and several actionable recommendations and resources are offered to strengthen PPIE in future PRO research.

Topics & Keywords

Mental Health and Patient Involvement Health Policy Implementation Science Diabetes Management and Education

Publication Details

Published in: Journal of Patient-Reported Outcomes

DOI: 10.1186/s41687-026-01036-x

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The PRO-CAR-T™ study: achieving excellence in patient and public involvement and engagement

Authors

Abstract

Topics & Keywords

Publication Details