Privacy concerns regarding personal health information in Myanmar: A cross-sectional survey in a least developed country

Protecting personal health information has long been a key ethical concern in healthcare. With the rise of digital health systems, privacy concerns have intensified. In least developed countries like Myanmar, where digital literacy is low, public and governmental awareness of privacy issues is limited, and data protection laws are lacking, the health information privacy area remains largely unaddressed and understudied. This study, therefore, aimed to assess the level of privacy concerns related to personal health information in Myanmar and identify the factors associated with these concerns. A cross-sectional survey was conducted from March to May 2024 among 424 participants recruited online and through two private clinics. A validated 21-item scale measuring six domains: Collection, Errors, Unauthorized Secondary Use, Improper Access, Control, and Awareness, was used. Confirmatory factor analysis was performed to validate the scale, and logistic regression was used to identify factors associated with the concerns. Among the 424 participants, 77.83% reported high concerns. The highest concern was observed in the Awareness domain (mean 5.02, SD 1.65), while the Collection domain showed the lowest (mean 3.41, SD 1.44). Participants aged 45 years or older had significantly lower odds of high concerns compared to those aged 18-24 years, with an adjusted odds ratio (aOR) of 0.29 (95% CI 0.09-0.88). In contrast, those reporting good health (aOR 3.72, 95% CI 1.69-8.23) and high health concerns (aOR 5.26, 95% CI 3.02-9.45) had increased odds of high privacy concerns. These findings highlight the need for robust privacy safeguards, legal frameworks, and trust-building measures to support Myanmar's transition to digital health systems. Sampling via online channels and private clinics likely introduced an urban/educated bias, limiting generalizability. However, the findings may still provide insights relevant for other least developed countries facing similar challenges in balancing digital innovation with the protection of personal health information.