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Alport Syndrome Foundation | Researchclopedia

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Alport Syndrome Foundation

Phoenix, Arizonanonprofit

21

Works

864

Citations

14

h-index

Top Research Topics

Cell Adhesion Molecules Research Renal and related cancers Renal Diseases and Glomerulopathies

Top Researchers

Hirofumi Kai Oita University

388 works6,715 citationsh-index: 41

Recent Research

Rachel Lennon,Jeffrey H. Miner,et al.

20260 citations

Peptidase Inhibition and Analysis

Connective tissue disorders research

Dialysis and Renal Disease Management

Platelet Disorders and Treatments

BRCA gene mutations in cancer

Mental Health and Patient Involvement

Genomics and Rare Diseases

Coagulation, Bradykinin, Polyphosphates, and Angioedema

Renal Transplantation Outcomes and Treatments

8 works352 citationsh-index: 7

André Weinstock

6 works284 citationsh-index: 5

Janine Reed Alport Syndrome Foundation

4 works162 citationsh-index: 3

Adit Bassi University of Liverpool

5 works65 citationsh-index: 3

Lisa Bonebrake Patient-Centered Outcomes Research Institute

7 works62 citationsh-index: 4

Diagnosis, management and treatment of the Alport syndrome – 2024 guideline on behalf of ERKNet, ERA and ESPN

Roser Torrá,Beata S. Lipska‐Ziętkiewicz,et al.

202433 citations

Lessons Learned from HERA: the First Alport Syndrome Therapeutic Clinical Trial

Benjamin Weinstock

20241 citations

Patient and Caregiver Perspective on PRO-Kid Quality of Life Tool

Lisa Bonebrake,Afton DeLucca

20240 citations

A Decentralized Registry for Adults and Children with Alport Syndrome: Alport Syndrome Foundation (ASF) Alport Patient Registry Design

Lisa Bonebrake,Benjamin Weinstock,et al.

20230 citations

When Should Dialysis Be Started in Children and Young Adults with Kidney Failure?

20230 citations