The impact of desmoid tumors: insights from the Desmoid Tumor Research Foundation Natural History Study, 2017–2023

Patients with DT can experience a high disease burden. Misdiagnosis can lead to unnecessary surgery, potentially delaying an appropriate treatment for DT, and tumor regrowth that can contribute to impaired QoL after surgery. The analysis of NHS data presented in this manuscript highlights real-world experiences of patients with DT and underscores the need for patient-centric treatment strategies and outcomes.