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Desmoid Tumor Research Foundation | Researchclopedia

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Desmoid Tumor Research Foundation

Suffern, New Yorkother

15

Works

70

Citations

6

h-index

Top Research Topics

Soft tissue tumor case studies Sarcoma Diagnosis and Treatment Soft tissue tumors and treatment

Top Researchers

A. M. Lucas Airbus (France)

113 works1,441 citationsh-index: 20

Recent Research

The impact of desmoid tumors: insights from the Desmoid Tumor Research Foundation Natural History Study, 2017–2023

Amanda Lucas,Shu Zhou,et al.

20250 citations

Tumors and Oncological Cases

Bone Tumor Diagnosis and Treatments

Megan L. Sulciner Brigham and Women's Hospital

43 works956 citationsh-index: 13

Danielle Braggio Ono Pharmaceutical (United States)

54 works724 citationsh-index: 14

Anna C. Greene Neuroendocrine Tumor Research Foundation

17 works566 citationsh-index: 8

Anton Lucas Desmoid Tumor Research Foundation

57 works549 citationsh-index: 13

Kelly Mercier Duke University

38 works494 citationsh-index: 14

SA13 An Assessment of Financial Burden and its Association with Desmoid Tumor Specific Symptoms and Impacts in Adult Desmoid Tumor Patients: Desmoid Tumor Research Foundation Natural History Study

Sophia Zhou,Amanda Lucas,et al.

20250 citations

A study to learn if nirogacestat works and is safe for adult participants with desmoid tumors: a plain language summary of the DeFi study

Bernd Kasper,Jeanne Whiting,et al.

20252 citations

164P The association of pain with function for adult patients with desmoid tumor: Findings from the desmoid tumor research foundation natural history study (2025)

Anton Lucas,Sicheng Zhou,et al.

20250 citations

Nirogacestat—the pathway to approval of the first treatment for desmoid tumors, a rare disease

Shivaani Kummar,Nam Q. Bui,et al.

20253 citations

Capturing Patient Voice to Improve Outcomes That Matter to Patients with Desmoid Tumor

Bernd Kasper,Mrinal M. Gounder,et al.

20248 citations